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Showing content with the highest reputation on 02/02/2019 in Posts

  1. Peanut gained another 2oz this week. She is up to 4# 7oz now. She also pulled her feeding tube out this morning, but she has been taking a bottle that is equal to what she was given through the feeding tube. As long as she continues to take a bottle, she won’t need the feeding tube. 🙏🏻
    4 points
  2. As told by her mother Brandi... So many of you have been wondering how Faith is doing. Thank you all for your thoughts prayers and support through this journey. Faith had a rough start since being brought into this world and been through more than most adults. She was born full term via c section due to being breech. Her head was under my ribs and she wouldn’t turn. When she came out she did pretty well Tuesday then on Wednesday she started having episodes of apnea. Her brain wasn’t sending signals to her lungs to breathe. She was put on a cpap then by Thursday she was placed on a ventilator. Friday we were told that she has trisomy 18, Edwards Syndrome which is a rare chromosomal defect. There is no cure, no fix, it just is. These babies have short life spans. They are lucky if they live past the first 6-9days of life. By Saturday the ventilator was doing all the breathing for her and Deryk and I had to make a heart breaking decision. That’s not a life living on a vent for the rest of her days. But our little girl wasn’t done fighting yet, she was not done living! The vent was discontinued, she opened her eyes and breathed! She was placed on monitors to track her oxygen, heart rate and respiration’s. We waited another week to see how she would do. No more episodes of apnea! We went through a week of education and learning how to care for once she came home. Our hope was restored! She would come home! Our Faith is now 2 weeks old and defying the odds! Our Faith is a true testimony that there is power in prayer! ❤️ I also have to say that the staff at Penn Highlands DuBois NICU and maternity are amazing people! We couldn’t have gotten this far without them! They went above and beyond their call of duty and made whatever accommodations for Faith, us and our family. They have been a God send for us and we are forever grateful to them. 💝
    1 point
  3. That is wonderful news. Continued prayers.
    1 point
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