Bon Posted May 27, 2023 Author Share Posted May 27, 2023 Link to comment Share on other sites More sharing options...
Petee Posted May 28, 2023 Share Posted May 28, 2023 11 hours ago, Bon said: May she soon be smiling and comfortable! Bon and Pappy 2 Link to comment Share on other sites More sharing options...
pwacm Posted May 28, 2023 Share Posted May 28, 2023 Hope she is better soon. She needs to catch a break. Bon 1 Link to comment Share on other sites More sharing options...
Bon Posted May 28, 2023 Author Share Posted May 28, 2023 8 hours ago, pwacm said: Hope she is better soon. She needs to catch a break. Yes she does!! Link to comment Share on other sites More sharing options...
Petee Posted May 30, 2023 Share Posted May 30, 2023 On 5/28/2023 at 6:31 AM, Bon said: Yes she does!! How is the little sweetheart this evening. At night, things seem to get worse, so if she's doing well tonight, then it's a great sign! Link to comment Share on other sites More sharing options...
WMJ77 Posted May 30, 2023 Share Posted May 30, 2023 what a Rollercoaster.....get well soon!!! Link to comment Share on other sites More sharing options...
Bon Posted June 1, 2023 Author Share Posted June 1, 2023 Dr Tasian came and saw her Twice! That’s crazy to me that he has come onto the floor to see her and update us! Anyway, he feels that the stone was mostly from her utis … so the UTIs are what caused the stone …not the stone causing the UTIs…the more UTIs she had the bigger the stone grew So we will be keeping her on an antibiotic long term Infection prevention is the key he said. He will continue her kidney stone care for as long as she needs. As for her bladder issues and such We will be going to children’s in Pittsburgh for that I did receive a call from the urology department and there is a dr there who reviewed her case and disagrees with Dr Schnecks views and would like to take over Faiths care for her urology needs. So basically the UTIs caused the stone, the stone harbored the bacteria creating more UTIs and the UTIs would then cause the stone to grow bigger….nasty vicious cycle But they do feel that she shouldn’t get UTIs as often anymore as long as we follow up with care to make sure there is no other factors contributing to cause the UTIs in the first place. It could have been from the sepsis she had back in her cancer days that started the process then the gastroparesis last summer that caused a lot of dehydration and lack of fluids to flush out the bacteria properly Pappy 1 Link to comment Share on other sites More sharing options...
Bon Posted June 1, 2023 Author Share Posted June 1, 2023 So plan is today Make sure her kidney isn’t holding urine ✅ Then they will take out the Foley catheter ✅ Then watch to make sure she can pee on her own ✅ Watch for any signs of distress Then if all goes well in the next 24 hrs We may be able to go home tomorrow! 🥳🤩 Pappy 1 Link to comment Share on other sites More sharing options...
pwacm Posted June 2, 2023 Share Posted June 2, 2023 I pray for her. She has had such a rough time. I don't think most people appreciate being healthy and not have to constantly struggle. Hope all goes well and she can get home today. Pappy and Bon 1 1 Link to comment Share on other sites More sharing options...
Bon Posted June 2, 2023 Author Share Posted June 2, 2023 Time to come home!! pwacm, Pappy, Mahatma Kane Jeeves and 1 other 4 Link to comment Share on other sites More sharing options...
WMJ77 Posted June 2, 2023 Share Posted June 2, 2023 WOOOOHOOOO!!!!! Bon 1 Link to comment Share on other sites More sharing options...
pwacm Posted June 2, 2023 Share Posted June 2, 2023 This is fantastic!! Bon 1 Link to comment Share on other sites More sharing options...
Bon Posted June 3, 2023 Author Share Posted June 3, 2023 They stopped to pick up Midgy around 3:35pm. Midgy was so happy to see her mommy walk in that door, I think she ran to their car to get to daddy!! Yes, she is daddy’s little wiener!! 🤭 Pappy 1 Link to comment Share on other sites More sharing options...
Petee Posted June 3, 2023 Share Posted June 3, 2023 12 hours ago, Bon said: Time to come home!! What an amazing child!! Thank you for sharing her journey! Link to comment Share on other sites More sharing options...
Bon Posted June 3, 2023 Author Share Posted June 3, 2023 0AD85C15-88E2-4027-8FED-DDE389E95B32.mov Pappy 1 Link to comment Share on other sites More sharing options...
Petee Posted June 3, 2023 Share Posted June 3, 2023 Hysterical! I think she's counting exercises and thinking what a bunch of hooey this is! Link to comment Share on other sites More sharing options...
Bon Posted June 3, 2023 Author Share Posted June 3, 2023 3 hours ago, Petee said: Hysterical! I think she's counting exercises and thinking what a bunch of hooey this is! That’s her bouncy chair! Just like an infant chair, but for older kids with developmental problems. Link to comment Share on other sites More sharing options...
Petee Posted June 5, 2023 Share Posted June 5, 2023 And she's handling it like champ! Link to comment Share on other sites More sharing options...
WMJ77 Posted June 12, 2023 Share Posted June 12, 2023 how is she doing since coming home Link to comment Share on other sites More sharing options...
Bon Posted June 13, 2023 Author Share Posted June 13, 2023 12 hours ago, WMJ77 said: how is she doing since coming home Great!! She’s singing, smiling more, happy & no more pain!! pwacm 1 Link to comment Share on other sites More sharing options...
WMJ77 Posted June 13, 2023 Share Posted June 13, 2023 whew!! that sounds great, so glad to hear this we need a video of her singing Link to comment Share on other sites More sharing options...
Bon Posted June 14, 2023 Author Share Posted June 14, 2023 Pappy and pwacm 2 Link to comment Share on other sites More sharing options...
WMJ77 Posted June 15, 2023 Share Posted June 15, 2023 ahh Link to comment Share on other sites More sharing options...
Petee Posted June 24, 2023 Share Posted June 24, 2023 On 6/14/2023 at 4:25 PM, Bon said: You can see the relaxation in her face! Bon 1 Link to comment Share on other sites More sharing options...
Bon Posted June 28, 2023 Author Share Posted June 28, 2023 Faith Marie, Midgy & Brandi spent most of the day at my house. When she first got to Amma’s house, Mama put her beside me on the couch & Chi Chi layer beside her. I took her hand & showed her how to give Chi a belly rub, Chi was eating it right up & Faith was smiling. I let go of her hand to see what she would do, she still petted her, but then she went for Chi’s head, smacked her in the snoot 2 times, grabbed her nose & pulled, then went and pulled on her left front leg. Chi just laid there & let her do whatever she wanted. I was surprised!! Chi loves her niece very much, she was the only dog the could lay on Brandi’s tummy when she was pregnant. Maybe that’s why they get along so well?!? Spawn of Bon 1 Link to comment Share on other sites More sharing options...
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