Jay Posted June 29, 2019 Share Posted June 29, 2019 That is beautiful. Link to comment Share on other sites More sharing options...
steelnut Posted June 30, 2019 Share Posted June 30, 2019 Thank you for sharing Bon, it was just beautiful! Link to comment Share on other sites More sharing options...
Bon Posted June 30, 2019 Author Share Posted June 30, 2019 You’re welcome! We were told today that Faith Marie is 10 1/2# & 24” long! She grew 2” since last month!! Sanibel, fadedgenes, pwacm and 4 others 7 Link to comment Share on other sites More sharing options...
Petee Posted June 30, 2019 Share Posted June 30, 2019 How are her skill levels doing versus what was expected? Link to comment Share on other sites More sharing options...
Bon Posted July 20, 2019 Author Share Posted July 20, 2019 Faith was 6 mos on July 15th, that’s a 9-18% survival rate for trisomy 18 babies. Faith will defy the odds and keep proving that there is power in prayer! Eastman, steelnut, mr.d and 5 others 6 1 1 Link to comment Share on other sites More sharing options...
WMJ77 Posted July 20, 2019 Share Posted July 20, 2019 love that smile...God bless ya steelnut, Bon, mr.d and 2 others 2 1 2 Link to comment Share on other sites More sharing options...
Petee Posted July 20, 2019 Share Posted July 20, 2019 What a little beauty! Bon, mr.d and steelnut 2 1 Link to comment Share on other sites More sharing options...
Bon Posted July 21, 2019 Author Share Posted July 21, 2019 Our Pastor read this in church 2 weeks ago. He said it was perfect for Brandi, Deryk, & Peanut. He is right...... hipower, mr.d, sapphire and 2 others 5 Link to comment Share on other sites More sharing options...
sapphire Posted July 21, 2019 Share Posted July 21, 2019 13 hours ago, Bon said: Faith was 6 mos on July 15th, that’s a 9-18% survival rate for trisomy 18 babies. Faith will defy the odds and keep proving that there is power in prayer! She is so sweet and her smile is contagious! 🥰 You go girl! Sending continued prayers for this precious baby. Bon, Sanibel, mr.d and 1 other 3 1 Link to comment Share on other sites More sharing options...
Popular Post Bon Posted August 1, 2019 Author Popular Post Share Posted August 1, 2019 Faith is 11 1/2 # as of last Saturday night. I got a phone call an hour ago asking if I could watch her till 4. 😍 ❤️ Here are a few pics I just took. pwacm, Pompeii, sapphire and 8 others 11 Link to comment Share on other sites More sharing options...
Petee Posted August 2, 2019 Share Posted August 2, 2019 She's turned into a little chubba wubba! Bon, Sanibel and mr.d 2 1 Link to comment Share on other sites More sharing options...
Popular Post Bon Posted August 2, 2019 Author Popular Post Share Posted August 2, 2019 11 hours ago, Petee said: She's turned into a little chubba wubba! Yes she has, isn’t it wonderful!! She is starting to eat baby food now, she loves applesauce!! The rice flakes helped put weight on her also. Brandi said every time a hole closed in her heart, she would go through a growth spurt. The last time it happened was when she grew 2” in 1 month, but they didn’t know the hole closed!! Faith Marie has one more hole, it usually requires surgery to close it. She is hungry a lot, wants held more, sleepy, etc. These are all the same things she did a couple months back when she had that big growth spurt. We are all praying that the last hole closed up!! We won’t know till the end of this month. 🙏🏻❤️🙏🏻 pwacm, jaman, hipower and 7 others 9 1 Link to comment Share on other sites More sharing options...
sapphire Posted August 2, 2019 Share Posted August 2, 2019 2 hours ago, Bon said: Yes she has, isn’t it wonderful!! She is starting to eat baby food now, she loves applesauce!! The rice flakes helped put weight on her also. Brandi said every time a hole closed in her heart, she would go through a growth spurt. The last time it happened was when she grew 2” in 1 month, but they didn’t know the hole closed!! Faith Marie has one more hole, it usually requires surgery to close it. She is hungry a lot, wants held more, sleepy, etc. These are all the same things she did a couple months back when she had that big growth spurt. We are all praying that the last hole closed up!! We won’t know till the end of this month. 🙏🏻❤️🙏🏻 Sending prayers for baby Faith that it closed and she doesn't need surgery. 🙏 😇 pwacm, Bon, Dobby and 3 others 2 1 3 Link to comment Share on other sites More sharing options...
Petee Posted August 3, 2019 Share Posted August 3, 2019 On 8/2/2019 at 8:58 AM, Bon said: Yes she has, isn’t it wonderful!! She is starting to eat baby food now, she loves applesauce!! The rice flakes helped put weight on her also. Brandi said every time a hole closed in her heart, she would go through a growth spurt. The last time it happened was when she grew 2” in 1 month, but they didn’t know the hole closed!! Faith Marie has one more hole, it usually requires surgery to close it. She is hungry a lot, wants held more, sleepy, etc. These are all the same things she did a couple months back when she had that big growth spurt. We are all praying that the last hole closed up!! We won’t know till the end of this month. 🙏🏻❤️🙏🏻 God has created our bodies to heal themselves naturally. Hopefully all her needs fall into place so she is able to heal herself. All of the love and care is obviously being provided. The rest may well follow. If not, then He also gave us knowledge to make quick repairs! Sweet baby, sweet family! Bon, WMJ77, Sanibel and 1 other 1 3 Link to comment Share on other sites More sharing options...
Jay Posted August 5, 2019 Share Posted August 5, 2019 Continued prayers. She is precious. Bon and WMJ77 1 1 Link to comment Share on other sites More sharing options...
Bon Posted August 11, 2019 Author Share Posted August 11, 2019 Had Faith entered in the Most Beautiful Baby in Elk Co at the fair last week. Brandi & I took Faith to her first Fair, plus you had to be there when they announced the winners. The pic with the wings is the one that was on her can you put money in it to cast your vote. ❤️ pwacm, steelnut, classicjenn and 5 others 8 Link to comment Share on other sites More sharing options...
WMJ77 Posted August 11, 2019 Share Posted August 11, 2019 ahhh so cute Bon 1 Link to comment Share on other sites More sharing options...
Sanibel Posted August 11, 2019 Share Posted August 11, 2019 Darling pictures! She is so cute and so loved. Bon 1 Link to comment Share on other sites More sharing options...
sapphire Posted August 11, 2019 Share Posted August 11, 2019 OMG, those little feetsies crossed at the ankles are just too cute. 🤗 Girl knows how to pose! 🤩 Congrats to baby 👑 Faith! Bon 1 Link to comment Share on other sites More sharing options...
Bon Posted August 11, 2019 Author Share Posted August 11, 2019 1 hour ago, sapphire said: OMG, those little feetsies crossed at the ankles are just too cute. 🤗 Girl knows how to pose! 🤩 Congrats to baby 👑 Faith! That is from the Trisomy 18. Her ankles were crossed when she was in the NICU. Link to comment Share on other sites More sharing options...
Bon Posted August 11, 2019 Author Share Posted August 11, 2019 Here are a couple more photos I took since this was her 1st Fair. sapphire and Sanibel 2 Link to comment Share on other sites More sharing options...
sapphire Posted August 11, 2019 Share Posted August 11, 2019 4 hours ago, Bon said: That is from the Trisomy 18. Her ankles were crossed when she was in the NICU. Aww...I didn't notice that before. Link to comment Share on other sites More sharing options...
sapphire Posted August 11, 2019 Share Posted August 11, 2019 22 minutes ago, Bon said: Her 'nanny' seems very attentive. Bon and Sanibel 2 Link to comment Share on other sites More sharing options...
Petee Posted August 11, 2019 Share Posted August 11, 2019 5 hours ago, Bon said: That is from the Trisomy 18. Her ankles were crossed when she was in the NICU. That just means that she's a natural! No lessons needed for that doll. Bon 1 Link to comment Share on other sites More sharing options...
Popular Post Bon Posted August 12, 2019 Author Popular Post Share Posted August 12, 2019 I was playing with Faith while her mommy did an errand. We were playing with a wiener dog, they go “bark bark”, because that’s what real wiener dogs sound like. The dog would bark, then kiss her cheek, this is the reaction I got, 😂 😍 pwacm, katie77, WMJ77 and 8 others 9 2 Link to comment Share on other sites More sharing options...
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