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This moment, taking her OUTSIDE to Sled Ride, was absolutely huge for us! Happy tears! A huge milestone and a huge accomplishment! 
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Faith Marie had a CT scan on Friday. She has a kidney stone in each kidney. Other then that, both kidneys look good & there is no cancer!! It was a year ago when she started chemo. 🙏🏻🟠🙏🏻

Faith Marie had to see a dentist in Pittsburgh last Friday about her teeth. It was just to make sure they were growing in right & no problems from the chemo.
Spacing is good, teeth are coming in fine, very clean, no problems!! 

I can’t even be.I’ve April was the last time I posted SMH anyway, so Faith no longer has the NG tube, she has a mic-key button in her belly so she can get her formula, ..it looks the air valve on a beach ball…anyway, she has been going to outpatient therapy weekly and has 7 therapies in home! She’s been busy! But she is making sooo much progress! Plus she is up to 20lbs now! She was down to 15lbs while on chemo so she is bouncing back weight wise! And her hair has gotten so thick!

Faith got glasses!

PRAISE THE LORD GOD ALMIGHTY!!!! CANCER AND THE LESIONS ARE GONE!!!! we still have to continue with chemo to kill it dead but all I can say FAITH DEFIES THE ODDS AND PROVES THERE IS POWER IN PRAYERS! THANKS BE TO GOD!!!!!!!

Faith Marie
P O Box 15
Force PA 15841

Peanut gained another 2oz this week. She is up to 4# 7oz now. She also pulled her feeding tube out this morning, but she has been taking a bottle that is equal to what she was given through the feeding tube. As long as she continues to take a bottle, she won’t need the feeding tube. 🙏🏻

I have goosebumps.  Thank-you for sharing this story.  Faith, and her entire family, will be in my prayers.

I have goosebumps.  Thank-you for sharing this story.  Faith, and her entire family, will be in my prayers.

I have goosebumps.  Thank-you for sharing this story.  Faith, and her entire family, will be in my prayers.

As told by her mother Brandi...
So many of you have been wondering how Faith is doing. Thank you all for your thoughts prayers and support through this journey. Faith had a rough start since being brought into this world and been through more than most adults. She was born full term via c section due to being breech. Her head was under my ribs and she wouldn’t turn. When she came out she did pretty well Tuesday then on Wednesday she started having episodes of apnea. Her brain wasn’t sending signals to her lungs to breathe. She was put on a cpap then by Thursday she was placed on a ventilator. Friday we were told that she has trisomy 18, Edwards Syndrome which is a rare chromosomal defect. There is no cure, no fix, it just is. These babies have short life spans. They are lucky if they live past the first 6-9days of life. 
By Saturday the ventilator was doing all the breathing for her and Deryk and I had to make a heart breaking decision. That’s not a life living on a vent for the rest of her days. 
But our little girl wasn’t done fighting yet, she was not done living! The vent was discontinued, she opened her eyes and breathed! She was placed on monitors to track her oxygen, heart rate and respiration’s. We waited another week to see how she would do. No more episodes of apnea! We went through a week of education and learning how to care for once she came home. Our hope was restored! She would come home! Our Faith is now 2 weeks old and defying the odds! Our Faith is a true testimony that there is power in prayer! ❤️
I also have to say that the staff at Penn Highlands DuBois NICU and maternity are amazing people! We couldn’t have gotten this far without them! They went above and beyond their call of duty and made whatever accommodations for Faith, us and our family. They have been a God send for us and we are forever grateful to them. 💝

You don't want garbage trucks running routes in daytime traffic, either

My heart is saddened to read this.  Prayers for comfort and peace for her family.  May God hold them close in the coming days and months.

Would anyone be interested in doing a group donation or fundraiser for her kids?  I believe the obit said that a fund was set up in their name.  I just feel the need to do something to make some kind of good out of this horrible tragedy.

Found this.  For anyone who'd like to contribute to her children:
 
Jennifer Kness Children's Fund c/o Phoenixville Federal, 120 Main Street, Phoenixville, PA 19460.

Would anyone be interested in doing a group donation or fundraiser for her kids?  I believe the obit said that a fund was set up in their name.  I just feel the need to do something to make some kind of good out of this horrible tragedy.

Would anyone be interested in doing a group donation or fundraiser for her kids?  I believe the obit said that a fund was set up in their name.  I just feel the need to do something to make some kind of good out of this horrible tragedy.

Would anyone be interested in doing a group donation or fundraiser for her kids?  I believe the obit said that a fund was set up in their name.  I just feel the need to do something to make some kind of good out of this horrible tragedy.

Would anyone be interested in doing a group donation or fundraiser for her kids?  I believe the obit said that a fund was set up in their name.  I just feel the need to do something to make some kind of good out of this horrible tragedy.

Would anyone be interested in doing a group donation or fundraiser for her kids?  I believe the obit said that a fund was set up in their name.  I just feel the need to do something to make some kind of good out of this horrible tragedy.

My heart is saddened to read this.  Prayers for comfort and peace for her family.  May God hold them close in the coming days and months.

My heart is saddened to read this.  Prayers for comfort and peace for her family.  May God hold them close in the coming days and months.

Yes I am. I called the PGC this afternoon and thanked them for for removing the swing from his antlers.  "Blue" was behind my house this afternoon along with "Spike" and the cows.