Just seeing this and you have another prayer warrier that will be lifting Faith in fervent prayer. She has defied odds before and God will see her through to do it again.
Just seeing this and you have another prayer warrier that will be lifting Faith in fervent prayer. She has defied odds before and God will see her through to do it again.
Dr. Meade feels that Faith will only need 18 weeks of chemo!
She also said that it is extremely rare that the chemo will shrink the tumor to the point that surgery will not be needed........
But we know Faith, and we know how she defies the odds and Proves there is Power in Prayer! Our Faith can move mountains! So prayer warriors, pray! Pray that God uses his power through her chemo to smite this tumor!
Ok folks here is another update,
No cancer in the lungs!!!!
She was having some issues keeping her oxygen up but nothing serious, just the anesthia still hanging out in her system.
She's eating well.
She's going to be receiving chemo today.
And we should be heading home tonight.
Her discharge was up in the air there for a while but now they've decided her going home should be okay
Warning, This is going to be a long post.
Also Trigger Alert
We took Faith to Pittsburgh on Thursday and Friday for some regular follow up visits, a BAHA hearing aid fitting as well as Pre-Op surgery clearance. The surgery is for her eyes due to strabismus with esotropia (which means her eyes are crossed but only one eye turns in at a time, not both at once)
So I’ll start from the top.
She was fitted for her hearing aid and as you seen in the previous post, it went well.
What we did learn is that Faith should only need this type of hearing aid and not a permanent one that’s implanted behind her ear. As she grows her hearing should get better as her ear canals widen. So good news. She also got a CT scan of her ears to make sure there is nothing physically affecting her hearing such as blockages or fluid or wax....we are waiting for the results on this.
We saw her cardiologist who was very pleased that her heart has remained stable. She still has the small vsd (hole in her heart) but this is not causing any issues or affecting her in any way other than when she gets sick she has a harder time getting over the colds. So Faith graduated to one year visits!! He was very pleased that Faith has exceeded his expectations! So yay! Good news!
We saw her eye doctor who measured her eyes once more to make sure the surgery was necessary and would be effective. Yes to both of those. Even though the inner muscle pulls her eyes inwards alternately, her vision itself is fine. So she can have her hey surgery! Yay! Good news!
Okay so there’s all the good news.
While we were down there Faith needed to have a screening abdominal ultrasound to check her kidneys. Children with Trisomy 18 are at higher risk of developing Wilms Tumor which is a type of kidney cancer.
We received these results on Friday
The ultrasound showed multiple lesions on her left kidney (nephroblastomas) as well as a 2.2cm mass (the size of a ping pong ball). It also showed she has gallstones too.
So an ultrasound is like looking at a black and white tv through a fish bowl. This does not give the drs a full view of how much her left kidney is affected.
So we are going down for an MRI to look at her left kidney and get a better idea of what’s going on.
Then they are going to try and do a biopsy while she is having her eye surgery.
Then once we get a better idea of what’s going on she may be receiving some “soft” chemotherapy which is the lightest stuff they can give her, easy on her heart as well as her immune system.
Or
She will receive “soft “ chemo and possibly have an operation to remove a part of or her whole kidney. This is depending on the MRI results as well as the biopsy.
We need to move fast. We are going to wage war. These lesions and this mass are ticking time bombs. It is not a matter of “if” it will turn to cancer, it is a matter of when and how bad, but remember, at this moment, it is not cancer, yet.
The chemo will act as a weed killer in a sense, by killing these nephroblastomas (the weeds) before they grow into a bigger problem and spread.
This will be a week by week and at times a day by day process.
This is not going to be something that is going away quickly, it’s going to take time and patience, but most of all...it’s going to take prayer.
So what I’m asking of all of you is to do what you’ve been doing all along.... pray.
If Faith has taught us anything it’s that when we come together as one, United, there is Power in Prayer and she is proof of this!
I don’t want you to feel sad.
I don’t want you to feel bad.
I don’t want you to feel sorry.
I want you to feel strong
I want you to feel the strength of the Holy Spirit coursing through your veins as you pray.
I want you to feel the power and the hope of Jesus Christ in your heart.
She is not just my Faith, she is OUR FAITH!
We are going to keep moving forward, we are not giving up! And Faith is going to keep doing what she’s always done, Defy the Odds and Prove that there really is Power in Prayer cause that’s how she rolls!
So pray folks and pray hard, put your hearts into it cause this little girl is living off of YOUR PRAYERS and YOUR LOVE!
Thank you for all your support and your faith in Faith❤️
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