Popular Post Bon Posted January 30, 2019 Popular Post Share Posted January 30, 2019 As told by her mother Brandi... So many of you have been wondering how Faith is doing. Thank you all for your thoughts prayers and support through this journey. Faith had a rough start since being brought into this world and been through more than most adults. She was born full term via c section due to being breech. Her head was under my ribs and she wouldn’t turn. When she came out she did pretty well Tuesday then on Wednesday she started having episodes of apnea. Her brain wasn’t sending signals to her lungs to breathe. She was put on a cpap then by Thursday she was placed on a ventilator. Friday we were told that she has trisomy 18, Edwards Syndrome which is a rare chromosomal defect. There is no cure, no fix, it just is. These babies have short life spans. They are lucky if they live past the first 6-9days of life. By Saturday the ventilator was doing all the breathing for her and Deryk and I had to make a heart breaking decision. That’s not a life living on a vent for the rest of her days. But our little girl wasn’t done fighting yet, she was not done living! The vent was discontinued, she opened her eyes and breathed! She was placed on monitors to track her oxygen, heart rate and respiration’s. We waited another week to see how she would do. No more episodes of apnea! We went through a week of education and learning how to care for once she came home. Our hope was restored! She would come home! Our Faith is now 2 weeks old and defying the odds! Our Faith is a true testimony that there is power in prayer! ❤️ I also have to say that the staff at Penn Highlands DuBois NICU and maternity are amazing people! We couldn’t have gotten this far without them! They went above and beyond their call of duty and made whatever accommodations for Faith, us and our family. They have been a God send for us and we are forever grateful to them. 💝 pooltime, Pompeii, Sanibel and 18 others 19 2 Link to comment Share on other sites More sharing options...
sapphire Posted January 30, 2019 Share Posted January 30, 2019 Faith is a fighter. She must take after the women in the family! Praying for the very best for this precious little angel. mr.d, Dobby, Polo and 1 other 1 1 2 Link to comment Share on other sites More sharing options...
Sanibel Posted January 30, 2019 Share Posted January 30, 2019 She is beautiful! You are all in our prayers. Polo, Bon and mr.d 1 2 Link to comment Share on other sites More sharing options...
MIM307 Posted January 30, 2019 Share Posted January 30, 2019 I have goosebumps. Thank-you for sharing this story. Faith, and her entire family, will be in my prayers. Bon, Polo and mr.d 1 1 1 Link to comment Share on other sites More sharing options...
Lyndsey33 Posted January 30, 2019 Share Posted January 30, 2019 Adorable. Glad she is holding her own. Polo, Bon and mr.d 1 1 1 Link to comment Share on other sites More sharing options...
katie77 Posted January 30, 2019 Share Posted January 30, 2019 Oh how precious. Prayers. Bon, Polo and mr.d 1 1 1 Link to comment Share on other sites More sharing options...
WMJ77 Posted January 30, 2019 Share Posted January 30, 2019 prayers to all of you.....she is a cutie mr.d, Polo and Bon 1 2 Link to comment Share on other sites More sharing options...
disgruntled Posted January 30, 2019 Share Posted January 30, 2019 Keep fighting Little one! mr.d, Bon and Polo 1 1 1 Link to comment Share on other sites More sharing options...
Jay Posted January 30, 2019 Share Posted January 30, 2019 Prayers for you and this beautiful child. Polo, mr.d and Bon 1 1 1 Link to comment Share on other sites More sharing options...
Guest Debby Posted January 30, 2019 Share Posted January 30, 2019 She is a beautiful little girl. I have been praying for her and the family since she was born. So glad she is doing so well. God is good. Link to comment Share on other sites More sharing options...
Administrators Pompeii Posted January 30, 2019 Administrators Share Posted January 30, 2019 what a cutie ... prayers to Faith, family and friends. mr.d, Polo and Bon 1 2 Link to comment Share on other sites More sharing options...
Petee Posted January 30, 2019 Share Posted January 30, 2019 She's definitely a little princess! Check out the crowns. Bon, mr.d and Polo 1 1 1 Link to comment Share on other sites More sharing options...
mr.d Posted January 30, 2019 Share Posted January 30, 2019 Great out come, and prayers work. Beautiful little girl. Bon, Sanibel and Polo 1 1 1 Link to comment Share on other sites More sharing options...
Georgie_girl Posted January 31, 2019 Share Posted January 31, 2019 I'm so glad she's doing well. I've been wondering. So cute!! Polo and Bon 1 1 Link to comment Share on other sites More sharing options...
Bon Posted January 31, 2019 Author Share Posted January 31, 2019 28 minutes ago, Georgie_girl said: I'm so glad she's doing well. I've been wondering. So cute!! I’m so happy you got to meet Peanut in the NICU. ❤️ Georgie_girl and WMJ77 1 1 Link to comment Share on other sites More sharing options...
Georgie_girl Posted January 31, 2019 Share Posted January 31, 2019 54 minutes ago, Bon said: I’m so happy you got to meet Peanut in the NICU. ❤️ Me too. I'm happy she got to go home! 💜💜 Bon, mr.d and WMJ77 3 Link to comment Share on other sites More sharing options...
etsaunt Posted January 31, 2019 Share Posted January 31, 2019 God works in mysterious ways. How great it is for this little princess to get such a loving family and for this family to get such a special baby girl❤️ I know you will enjoy everyday with the little beauty. mr.d, Bon, WMJ77 and 1 other 2 1 1 Link to comment Share on other sites More sharing options...
Polo Posted January 31, 2019 Share Posted January 31, 2019 Beautiful baby! A precious gift! Prayers for her and family. Bon 1 Link to comment Share on other sites More sharing options...
BART Posted January 31, 2019 Share Posted January 31, 2019 This is so tender and heartwarming ! We cannot comprehend how close our Lord watches over these little ones. God bless to all in this family, and prayers for this tiny Youngster!! WMJ77, mr.d, Bon and 2 others 3 1 1 Link to comment Share on other sites More sharing options...
momtothree Posted February 1, 2019 Share Posted February 1, 2019 She's precious. Prayers for baby and her family. mr.d, Polo and Bon 1 1 1 Link to comment Share on other sites More sharing options...
junk Posted February 1, 2019 Share Posted February 1, 2019 So Cute. Thoughts and prayers for Faith Marie. Bon and mr.d 1 1 Link to comment Share on other sites More sharing options...
junk Posted February 1, 2019 Share Posted February 1, 2019 Bon, did you knit her outfit in the last photo? Really cool. sapphire and Bon 1 1 Link to comment Share on other sites More sharing options...
Tinyus Posted February 1, 2019 Share Posted February 1, 2019 Faith is a precious gift...she is adorable. I love the pictures, thank you for sharing such a heart warming story. It was nice to hear such positive things. Brought tears to my eyes...enjoy every little bit of her!! Bon 1 Link to comment Share on other sites More sharing options...
Bon Posted February 1, 2019 Author Share Posted February 1, 2019 2 hours ago, junk said: Bon, did you knit her outfit in the last photo? Really cool. No, that was a gift from the NICU nurses. junk and sapphire 2 Link to comment Share on other sites More sharing options...
sapphire Posted February 1, 2019 Share Posted February 1, 2019 1 hour ago, Bon said: No, that was a gift from the NICU nurses. I so love her princess beanie. junk and Bon 1 1 Link to comment Share on other sites More sharing options...
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