Spawn of Bon

In Faiths case, nothing. The stones are just chillin in her kidneys and not causing any blockage or issues. Faith is feeling fine and not showing any symptoms of discomfort. So we just make sure she is well hydrated and monitor her for now. If she starts showing symptoms I.e. fever, nausea, puking, crying, pain….back to CHP we go.

And some of her best smiles!

And Faith getting some love from her gramma and her best friend!

New happenings in the world of Faith! She has a medical device called a stander for at home! It helps put necessary weight on her joints and builds muscles and assists with bone growth as well!

Not yet, some days her eyes are better than others lol. The eye dr who was going to do her eyes recently moved to Georgia so we have to see a new eye dr and start the process all over again lol

I can’t even be.I’ve April was the last time I posted SMH anyway, so Faith no longer has the NG tube, she has a mic-key button in her belly so she can get her formula, ..it looks the air valve on a beach ball…anyway, she has been going to outpatient therapy weekly and has 7 therapies in home! She’s been busy! But she is making sooo much progress! Plus she is up to 20lbs now! She was down to 15lbs while on chemo so she is bouncing back weight wise! And her hair has gotten so thick!

Scans are clear!NO CANCER!!!! G-tube surgery will be scheduled in 2-3 weeks!

She tolerates the glasses way better than her hearing aid. She can do about 20 min...maybe a half hour before she gets overstimulated by the glasses compared to her hearing aid where we are lucky if she can do it for 15 min.....sensory input overload

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And look at all she’s doing! No hands!

Faith got glasses!

She works hard! I can see how much she is concentrating and her determination! Lol❤️

This is one of the exercises Faith is doing at Out patient physical therapy, it’s to help her core strength so she is able to sit better and hopefully in the future walk ❤️

Moms IPad storage is full so that’s why she can’t post pics...her ipad won’t let her download anymore which in turn inhibits her posting pics but....... I can!!! HAPPY EASTER!

Thanks Mr D!!!!

Whoa! I didn’t know we made the Pittsburgh news!! Holy crapola! 😮😮😮😮🥰🥰🥰🥰

I tried to upload her video for her last chemo, but it was too big 😭 so here is today’s pic of the day!

Happy Birthday beautiful girl, I can’t even begin to express my love and admiration for you. Your beauty and strength and that infectious smile inspire me and many others! Happy last Chemo day too! It’s a beautiful day! Hallelujah!

Hey everybody! I know it’s been a hot minute since you’ve seen pics of Faith! This will get your smile tanks full again! Also we have ONE MORE CHEMO TO GO! It’s on her birthday of course but hey it’s a great birthday present to be cancer free! So we will take it! After all the poor kid has been through she did loose 2 1/2 pounds, her base weight prior to all this was 17.5, but with the help of the NG tube she is back up to 16.5lbs! Yay! Sorry for late posting but here is Christmas and New Years!

Im sure they are all smiling down from above at what a beautiful job you all have done and honoring their memories.

Its like a weiner dog on steriods!

I totally agree. Not cute not cute at all some things should not be remixed. The original is the best!