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Thank you, to everyone who has followed along with Faith Marie’s journey to reach a year old!! The majority of us learned what Trisomy 18 is. We also learned that “Trisomy 18 is a Diagnosis, Not a Prognosis.” We have no idea what the future holds, we will go day by day. Everything is in God’s Hands, His plans & His time. 🙏🏻💜🙏🏻

The shirt says - For This Little Girl We Have Prayed

Happy 1st birthday Faith Marie!!

She had an oxygen level of 97% through the night! 
Still congested but lungs are sounding much clearer, it’s like it went back to her nose again lol but I think a few more days and we will be almost back to normal 😁

We just loved getting these pictures today!!  😂  ❤️  🦌  💚 

LOVE LOVE LOVE the smiles

LOVE LOVE LOVE the smiles

Brandi took these last night when I was talking to her on the phone, it was on speaker. Faith was listening intently to Grandma & babbling right along with us. 😂

The very first onesie shirt I bought when I found out we were going to be grandparents to a peanut!! She is finally able to wear it!!
 

Yes Bon she Is perfect!  What a beautiful child❤️ I check for new pictures all the time. Thank you for sharing this precious baby with us all.  Although I have never met you or your family, little Faith has really touched my heart.  She is a rockstar.  

Yes Bon she Is perfect!  What a beautiful child❤️ I check for new pictures all the time. Thank you for sharing this precious baby with us all.  Although I have never met you or your family, little Faith has really touched my heart.  She is a rockstar.  

Yes Bon she Is perfect!  What a beautiful child❤️ I check for new pictures all the time. Thank you for sharing this precious baby with us all.  Although I have never met you or your family, little Faith has really touched my heart.  She is a rockstar.  

Yesterday was Faith Marie’s 8th month birthday. She is 13# & 24 1/2” long. She loves most baby foods, loves to “talk”, & knows who is talking to her. She has been learning so much stuff this past month. Her appt in Pitts went well, so well in fact, the Drs said that Faith would live past her 1st birthday.  With all the prayers this little girl has in our area, state, and country, God hears them, and He has healed most of the problems she was born with! Thank you Jesus!!
 

Trust me, God has healed things inside Faith Marie already. He has given her life each month. We have seen Him work His miracles everyday!!

Just remember G*d overrules doctors all the time.

I was playing with Faith while her mommy did an errand. We were playing with a wiener dog, they go “bark bark”, because that’s what real wiener dogs sound like. The dog would bark, then kiss her cheek, this is the reaction I got, 😂 😍

Had Faith entered in the Most Beautiful Baby in Elk Co at the fair last week. Brandi & I took Faith to her first Fair, plus you had to be there when they announced the winners. The pic with the wings is the one that was on her can you put money in it to cast your vote. ❤️

Yes she has, isn’t it wonderful!! She is starting to eat baby food now, she loves applesauce!! The rice flakes helped put weight on her also.
Brandi said every time a hole closed in her heart, she would go through a growth spurt. The last time it happened was when she grew 2” in 1 month, but they didn’t know the hole closed!!
Faith Marie has one more hole, it usually requires surgery to close it. She is hungry a lot, wants held more, sleepy, etc. These are all the same things she did a couple months back when she had that big growth spurt. We are all praying that the last hole closed up!! We won’t know till the end of this month. 🙏🏻❤️🙏🏻

Faith is 11 1/2 # as of last Saturday night. I got a phone call an hour ago asking if I could watch her till 4. 😍 ❤️
Here are a few pics I just took.

Faith was 6 mos on July 15th, that’s a 9-18% survival rate for trisomy 18 babies. Faith will defy the odds and keep proving that there is power in prayer!

Why are you taking my picture grandma?
 

Faith Marie’s 1st Easter!!