Spawn of Bon

I can’t even be.I’ve April was the last time I posted SMH anyway, so Faith no longer has the NG tube, she has a mic-key button in her belly so she can get her formula, ..it looks the air valve on a beach ball…anyway, she has been going to outpatient therapy weekly and has 7 therapies in home! She’s been busy! But she is making sooo much progress! Plus she is up to 20lbs now! She was down to 15lbs while on chemo so she is bouncing back weight wise! And her hair has gotten so thick!

Not yet, some days her eyes are better than others lol. The eye dr who was going to do her eyes recently moved to Georgia so we have to see a new eye dr and start the process all over again lol

I can’t even be.I’ve April was the last time I posted SMH anyway, so Faith no longer has the NG tube, she has a mic-key button in her belly so she can get her formula, ..it looks the air valve on a beach ball…anyway, she has been going to outpatient therapy weekly and has 7 therapies in home! She’s been busy! But she is making sooo much progress! Plus she is up to 20lbs now! She was down to 15lbs while on chemo so she is bouncing back weight wise! And her hair has gotten so thick!

I can’t even be.I’ve April was the last time I posted SMH anyway, so Faith no longer has the NG tube, she has a mic-key button in her belly so she can get her formula, ..it looks the air valve on a beach ball…anyway, she has been going to outpatient therapy weekly and has 7 therapies in home! She’s been busy! But she is making sooo much progress! Plus she is up to 20lbs now! She was down to 15lbs while on chemo so she is bouncing back weight wise! And her hair has gotten so thick!

I can’t even be.I’ve April was the last time I posted SMH anyway, so Faith no longer has the NG tube, she has a mic-key button in her belly so she can get her formula, ..it looks the air valve on a beach ball…anyway, she has been going to outpatient therapy weekly and has 7 therapies in home! She’s been busy! But she is making sooo much progress! Plus she is up to 20lbs now! She was down to 15lbs while on chemo so she is bouncing back weight wise! And her hair has gotten so thick!

And look at all she’s doing! No hands!

Scans are clear!NO CANCER!!!! G-tube surgery will be scheduled in 2-3 weeks!

Scans are clear!NO CANCER!!!! G-tube surgery will be scheduled in 2-3 weeks!

Scans are clear!NO CANCER!!!! G-tube surgery will be scheduled in 2-3 weeks!

Faith got glasses!

She tolerates the glasses way better than her hearing aid. She can do about 20 min...maybe a half hour before she gets overstimulated by the glasses compared to her hearing aid where we are lucky if she can do it for 15 min.....sensory input overload

Faith got glasses!

She tolerates the glasses way better than her hearing aid. She can do about 20 min...maybe a half hour before she gets overstimulated by the glasses compared to her hearing aid where we are lucky if she can do it for 15 min.....sensory input overload

She is getting so big.   Thanks for the updates.
She is in our hearts. 💕

This precious child....❤️❤️❤️🙏🙏🙏🙏🙏
 

How could she be more precious!!  I still want to see the huge smile, but that one will do.  She looks curious.  How does she react to the glasses?

she rocks those purple glasses !!!

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She works hard! I can see how much she is concentrating and her determination! Lol❤️

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And look at all she’s doing! No hands!