Spawn of Bon Posted January 15 Share Posted January 15 Happy 5th Birthday Faith ❤️❤️❤️❤️ 5 Rocks 🤘😎🤘! https://fb.watch/pA_Adxlh-W/? Polo and Bon 2 Link to comment Share on other sites More sharing options...
Petee Posted January 16 Share Posted January 16 14 hours ago, Spawn of Bon said: Happy 5th Birthday Faith ❤️❤️❤️❤️ 5 Rocks 🤘😎🤘! https://fb.watch/pA_Adxlh-W/? Of my goodness, her expressions just make me howl! Link to comment Share on other sites More sharing options...
Polo Posted January 22 Share Posted January 22 This little one is just adorable! Hope she had a wonderful birthday! Bon 1 Link to comment Share on other sites More sharing options...
Bon Posted January 22 Author Share Posted January 22 23 minutes ago, Polo said: This little one is just adorable! Hope she had a wonderful birthday! She did!! Polo 1 Link to comment Share on other sites More sharing options...
Bon Posted June 14 Author Share Posted June 14 Faith Marie needs prayers!! You have seen that Faith has been sick off an on since the beginning of May A virus that aggravated her gastritis and has caused issues with constipation Monday 6/10, Faith was very tired and slept throughout the day I chalked it up to her just being through so mich that it caught up to her and she needed the rest yet all seemed well with the world Then... Tuesday 6/11 Faith woke up not feeling well , same thing, cd, clammy, high heart rate, no fever, but lethargic I did all that needed done, monitored vitals gave meds, I did all that I knew I could do and was seemingly maintaining her at home However when Deryk got home from work she seemed to just give in to whatever this is, increased heart rate, temp of 101F We were getting things packed up to take her to Children's b But then Her oxygen levels dropped into the 50s% and she went unresponsive Which prompted us to call 911, (Thank You Bennets Valley Ambulance and DuSan) She was taken to Penn Highlands where she was stabilized Then they life flighted her to Children's So far since being here - her oxygen is staying in the 90s -her heart rate was high... 160s,however has improved to baseline today (6/13) - her blood pressure was also high until today, that has also improved - her temp finally improved today 6/13 She is still unwell They don't know yet what's happening or the cause She's extremely fatigued, sleeping a lot If she's moved or stimulated she gags and retches She has rashes that comes and goes Her stomach is tender She has not had the coffee ground emesis as bad as last time although if we try to give her anything in her stomach she immediately rejects it with bile and bloody vomit So here is where we are at... This is what we know she DOESNT have It's not a UTI It's not a virus - flu - covid - rsv - or any respiratory/stomach bug It's not an infection her blood As a matter of fact it's not any type of infection that we can tell It's not her kidneys It's not her gallbladder or the gallstones It's not Lymes It's not pancreatitis So they did a IV contrast CT scan to check her stomach and intestines And it showed nothing 😔 My friends and family, please pray for OUR Faith, 🙏, We are thinking that the episodes that happened in May weren't viruses due to the fact that each episode had similar symptoms however each episode seems to worsen in some way It seems to be a flare up of something So I humbly ask for your prayers for our Faith, Pray to our Great Physician, our almighty God and Father that this test reveals the cause of what's making Faith sick and miserable and pray for these doctors and nurses here They have been so engaged and involved and REALLY investigating and searching for answers Pray the answer reveals itself to them In Jesus' Mighty Name we pray together 🙏 Amen Link to comment Share on other sites More sharing options...
Bon Posted June 14 Author Share Posted June 14 You can tell in this photo from last night that Faith Marie doesn’t feel well at all. Link to comment Share on other sites More sharing options...
WMJ77 Posted June 14 Share Posted June 14 do they think they know whats going on with her?....prayers all around Link to comment Share on other sites More sharing options...
Bon Posted June 15 Author Share Posted June 15 4 hours ago, WMJ77 said: do they think they know whats going on with her?....prayers all around Today so far they are leaning towards migraines. But they aren’t 100% positive. Link to comment Share on other sites More sharing options...
Petee Posted June 15 Share Posted June 15 It could be a Migraine! They can cause all of the things you mentioned. What an answer to prayer if they can nail it down to this. Link to comment Share on other sites More sharing options...
Bon Posted June 16 Author Share Posted June 16 They came up with this as the diagnosis…. Dysautonomia. Link to comment Share on other sites More sharing options...
WMJ77 Posted June 16 Share Posted June 16 that's a pretty broad diagnosis poor thing , she just needs a nice break from it all for a change, but that smile helps!! Link to comment Share on other sites More sharing options...
Bon Posted June 18 Author Share Posted June 18 Autonomic Dysfunction Is the name of what she has. The great news is..they are home!! tatty 1 Link to comment Share on other sites More sharing options...
Bon Posted June 19 Author Share Posted June 19 On 6/16/2024 at 5:58 PM, WMJ77 said: that's a pretty broad diagnosis poor thing , she just needs a nice break from it all for a change, but that smile helps!! We found out she has had this since she was born. All those things that landed her in the hospital for a few days/week or surgeries are part of this Autonomic Dysfunction. Her everyday things; drooling, being hot all the time & sleeping all day, are just to name a few more things that are part of this AD. Link to comment Share on other sites More sharing options...
Petee Posted June 20 Share Posted June 20 Poor baby! Imagine having such terrible sensations and not being able to convey them to someone who can help you. She is a miracle! Her smile takes your breath away. Polo 1 Link to comment Share on other sites More sharing options...
Polo Posted June 25 Share Posted June 25 She is a beautiful child and I enjoy seeing her mother's posts on FB. She has a wonderful family, too. I enjoy keeping up with her progress and praying for her and her family. Bon 1 Link to comment Share on other sites More sharing options...
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