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Meet my granddaughter Faith Marie


Bon

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On 1/21/2023 at 9:33 AM, Spawn of Bon said:

This is where we got Milo, we got him last year actually a year exacting…from Gregg Paladina in Philipsburgh, this man LOVES this breed, and cares for them deeply, Milo’s parents were imported from Germany. Milo is 74lbs now and a little over a year.

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so cute

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  • 1 month later...

She spent 13 days in CHP & just got home on Monday. She was a very very sick little girl. Faith Marie had a few things going on all at the same time. She ended up getting a GJ tube. Her stomach is shot, it’s very irritated, and can only be used for medication. She is on a continuous feed now. She had to have a tube put in her intestines right outside the stomach, that’s where her formula goes 24/7. That kidney stone she has is causing her trouble, she had a major UTI even though she was on an antibiotic for it. It needs to come out, but she needs to be healthy for them to do surgery. While there, she ended up picking up a virus (cold) in the emergency department or observation room. She did not need this. 
This girl has proved over & over that there is Power In Prayer!! 🙏🏻❤️🙏🏻

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Well, she made another trip Thursday afternoon & they got home around 10:30 that night. She has pneumonia in her left lung lower lobe. They also found a bladder stone. :surrender:
She was a happy girl Friday morning, first time in awhile!! 😊

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Our last admission in February we were told her kidney stone has gone from 8mm to 11 mm

Then we saw urology after we got discharged back in February…..
They said her urinary tract infections are from her bladder not working right not from the stones but rather a neurogenic bladder from a possible tethered spinal cord
They also said that the 11mm stone is not a stone nor is it in her kidney
And I needed to see pediatric surgery to discuss this unknown growth 
Leading me to believe that this stone was not a stone and it was instead her cancer reoccurring 
Then we got admitted again over Easter weekend for pain, fever and tachycardia , we were told that this growth is now 17 mm
Dr. Meade (her cancer doctor) stepped in and said Whoa! This is not cancer, nor is is a growth, it IS in fact a stone on the INSIDE of her kidney

So there was a lot of back n forth over this last 5 days we were in the hospital 

urology is now telling us that it is not A stone but rather MULTIPLE stones lined up or clustered together in one spot making it SEEM like one stone…but it’s difficult to tell on the ultra sounds
However they refuse to do any tests to find out for sure because this infection she has now is not related to her kidney stones and probably was so bad and more related to her Covid infection and they can’t do anything right now anyway because she is too sick

They also have no plans to remove the stones in the future because they are not obstructing anything 
(even though the ultra sound tech said it’s pretty close and she doesn’t know how any fluid is getting around this “stone” as it is…😑
But anyway the stones aren’t causing any issues so there’s no reason to deal with them and they want to continue to monitor the stones as we have been and follow up with the MRI Faith has scheduled in May to check to see if she has a Tethered spinal cord
 (her spinal cord may be attached to her spine rather than just freely present in the spinal column and it may be being compressed which is causing an interruption in communication between her brain and bladder which is why her bladder isn’t emptying which may be why she’s having frequent UTIs) 
However Dr. Meade feels if Faith had this tethered cord issue it would have already been discovered on her previous numerous MRIs she’s had in the pas two years……
So we are home because Faith is fine now and urology will just “continue to monitor” 🙄😑😒

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