Spawn of Bon Posted April 27, 2023 Share Posted April 27, 2023 However I did take some Easter photos just in case we ended up in the hospital again Eastman and Pappy 2 Link to comment Share on other sites More sharing options...
Petee Posted April 28, 2023 Share Posted April 28, 2023 4 hours ago, Spawn of Bon said: However I did take some Easter photos just in case we ended up in the hospital again Sweet, sweet baby! Link to comment Share on other sites More sharing options...
WMJ77 Posted May 1, 2023 Share Posted May 1, 2023 love love the hat, such a cutie and growing up fast...glad you all are home !!!! Link to comment Share on other sites More sharing options...
Bon Posted May 12, 2023 Author Share Posted May 12, 2023 We all got awesome news yesterday!! Brandi, Faith & Aunt Estelle went to CHOP yesterday, this was due to a dr visit Brandi & I took Faith to in Erie last Wednesday. The urology dr there said Faith needed to get that kidney stone out & didn’t understand why CHP why dragging their feet. We both told her that that the urology dept wouldn’t even see Faith & made all kinds of excuses as to why she is getting UTI’s. She called CHP herself, came back & said I know 2 dr’s at CHOP. Let me talk to them, then you call Monday to set up the appointment. Tuesday Brandi found out they were going Thursday. Deryk’s aunt has been to Philly before & said she would take them (thank you Estelle ❤️)!! They did an ultrasound on Faith, the kidney stone grew another 2mm since Easter Day. It is 19mm now. 😡(thank you CHP) The good news is as soon as Brandi sends them her last heart Dr notes, they will schedule surgery!! She could be having surgery as soon as next week!! Our prayers have been answered!! 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻 katie77 1 Link to comment Share on other sites More sharing options...
Petee Posted May 12, 2023 Share Posted May 12, 2023 God opened a door for her! Blessings! Bon 1 Link to comment Share on other sites More sharing options...
WMJ77 Posted May 12, 2023 Share Posted May 12, 2023 GREAT NEWS!!....Well if you call surgery great news....but in this case Bon 1 Link to comment Share on other sites More sharing options...
Bon Posted May 13, 2023 Author Share Posted May 13, 2023 19 hours ago, WMJ77 said: GREAT NEWS!!....Well if you call surgery great news....but in this case This is great news considering the kidney stone was 8mm last year & now it’s bigger then an acorn. No one can pass one that size, even at 8mm you are talking pain, real painful. Link to comment Share on other sites More sharing options...
Bon Posted May 13, 2023 Author Share Posted May 13, 2023 Faith has been approved to have the surgery. Will probably hear on Monday when. 🥹 Pompeii 1 Link to comment Share on other sites More sharing options...
WMJ77 Posted May 13, 2023 Share Posted May 13, 2023 I only ever had 1 and I didnt like it at all!!!! Bon 1 Link to comment Share on other sites More sharing options...
Bon Posted May 18, 2023 Author Share Posted May 18, 2023 Faith is scheduled for surgery next Wednesday!! 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻 Link to comment Share on other sites More sharing options...
WMJ77 Posted May 18, 2023 Share Posted May 18, 2023 fingers crossed and prayers going out Bon 1 Link to comment Share on other sites More sharing options...
Petee Posted May 18, 2023 Share Posted May 18, 2023 On 5/13/2023 at 3:23 PM, WMJ77 said: I only ever had 1 and I didnt like it at all!!!! Anyone who does like it is certifiable! I have had way too many to count and the only thing I really like to when I go to sleep, but then they wake you up!!!!! Bon 1 Link to comment Share on other sites More sharing options...
Administrators Pompeii Posted May 18, 2023 Administrators Share Posted May 18, 2023 7 hours ago, Bon said: Faith is scheduled for surgery next Wednesday!! 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻 God Bless Faith!! Bon and WMJ77 1 1 Link to comment Share on other sites More sharing options...
Petee Posted May 19, 2023 Share Posted May 19, 2023 6 hours ago, Pompeii said: God Bless Faith!! And bless her wonderful family who have cared for God's little darling for this time. Bon 1 Link to comment Share on other sites More sharing options...
Bon Posted May 19, 2023 Author Share Posted May 19, 2023 We can’t wait till this is over & hope Faith will start to gain weight again!! She was scheduled for July 11th, but her Dr said that was too long to wait. He decided to come in on his first day of vacation just for Faith Marie to get that “Acorn” out of her kidney!! How awesome is that!! I hope, if he is married, that his family will understand. God Bless you Dr Tasian!! 🙏🏻❤️🙏🏻 Link to comment Share on other sites More sharing options...
Bon Posted May 19, 2023 Author Share Posted May 19, 2023 11 hours ago, Petee said: And bless her wonderful family who have cared for God's little darling for this time. That would mainly be Faith’s #1 nurse during the day & mama after 4pm….. Brandi!! Daddy gets home @ 5. Grandma (Emma as Faith pronounces it 😍🥰) comes when called or just drops in, Papa drops in after 3, usually when told to. Other than that, we see Faith when asked to babysit, which is so so hard to do. 🙅♀️🤦🏼♀️💆♀️ She is such a wild child!! 😁😋 Link to comment Share on other sites More sharing options...
Spawn of Bon Posted May 19, 2023 Share Posted May 19, 2023 I thought I’d add one more lol “For those about to Rock!” I know we are! We are ready to rock and roll this stone right outta here! Surgery is scheduled for NEXT WEDNESDAY! 😳 Bon 1 Link to comment Share on other sites More sharing options...
Petee Posted May 19, 2023 Share Posted May 19, 2023 2 hours ago, Spawn of Bon said: I thought I’d add one more lol “For those about to Rock!” I know we are! We are ready to rock and roll this stone right outta here! Surgery is scheduled for NEXT WEDNESDAY! 😳 Really Buddy? You want to make sumpen outta dis? Come here, I'll make sumpen outta you! Link to comment Share on other sites More sharing options...
Bon Posted May 21, 2023 Author Share Posted May 21, 2023 On 5/19/2023 at 1:32 PM, Spawn of Bon said: I thought I’d add one more lol “For those about to Rock!” I know we are! We are ready to rock and roll this stone right outta here! Surgery is scheduled for NEXT WEDNESDAY! 😳 Miss P-Nut is our cute little biker chick!! Link to comment Share on other sites More sharing options...
Petee Posted May 21, 2023 Share Posted May 21, 2023 9 hours ago, Bon said: Miss P-Nut is our cute little biker chick!! Yes she is! Link to comment Share on other sites More sharing options...
Bon Posted May 24, 2023 Author Share Posted May 24, 2023 Faith was ok’d today for surgery tomorrow morning @ 5:45am. 🙏🏻🙏🏻🙏🏻 Link to comment Share on other sites More sharing options...
Petee Posted May 24, 2023 Share Posted May 24, 2023 Baby girl in on the move to healing! Link to comment Share on other sites More sharing options...
Bon Posted May 24, 2023 Author Share Posted May 24, 2023 Surgery went well, she is in recovery. 🙏🏻❤️🙏🏻 Thank you Jesus, Thank you God!! Pompeii 1 Link to comment Share on other sites More sharing options...
Petee Posted May 24, 2023 Share Posted May 24, 2023 4 hours ago, Bon said: Surgery went well, she is in recovery. 🙏🏻❤️🙏🏻 Thank you Jesus, Thank you God!! Waking up from surgery is always a booger! I hope she just flies through it! Link to comment Share on other sites More sharing options...
Bon Posted May 27, 2023 Author Share Posted May 27, 2023 Updated Update on Faith Marie!! Thursday- Peanut had a rough night, waking up crying, dry heaving and seemingly in pain…obviously……they are keeping her overnight again tonight, which I expected, they want to keep a close eye on her to make sure she’s not brewing an infection. Fever of 102.2 F They think it’s an infection caused by the bacteria that was on the stone, when they broke it up the bacteria of course got knocked loose Kinda like dust , when you move things around the dust gets knocked around and in the air. Heart rate is finally between the 110s and 130s compared to the 150s 180s earlier Temp is 99.1 She’s feeling better, her breathing isn’t hitching anymore She’s FINALLY resting peacefully and has been for the last 2 hours. I’m not too stressed out, they really are staying on top of things and we’re prepared for this to happen, they’re listening when I tell them stuff. There’s a really good open communication lines with us, the nurses and urology all working together. We all were assuming this would happen, hoping it wouldn’t but honestly I’m not shocked or surprised …we all expected it. Friday - Well folks… Dr Tasian had initially said Faith would probably go to the PICU (pediatric intensive care unit) and Faith decided to make him stick to his word……. She was doing well for a short time then this evening she started going back the other way again, fever high heart rate and just overall uncomfortable We will be going to the ICU shortly which Dr Tasian had initially planned for. The antibiotics that Faith has received aren’t kicking the enterococcus bacteria, could have been a sneaky piece of infected broken stone debris somewhere hiding. They are doing many tests to try and pin down what exactly is happening Dr Tasian did say many times that infection is common with this procedure and yes that includes sepsis She needs closer monitoring to make sure this thing doesn’t get too out of control. I can’t promise any updates for awhile because Deryk and I have not slept yet and once we get settled we are gonna need a nap 😴 We are in ICU …. Trying to get things stabilized. Saturday - Peanut is better The sepsis is under control…vancomycin is the antibiotic that seems to be treating the infection She’s still uncomfortable But we are going to try and give her food today..Kate farms We think that part of her discomfort is empty. Looks like we will be graduating from the ICU today We will be moved back down to the regular floor. Annnnd we are staying in ICU. She popped a fever 101.3 Her potassium is less than 2 … this is an electrolyte that affects the heart rhythm .. so that needs fixed And her phosphorus is low, that can cause weakness and fatigue Those need fixed before she can go to the regular floor. Link to comment Share on other sites More sharing options...
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