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Posts posted by Petee
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12 hours ago, Spawn of Bon said:
Where do I begin
Well all I can say is this … The kidney saga continues 🤦♀️
We’ve been quiet because we didn’t want to post without knowing the answers
We still don’t
The kidney that Faith had the 2cm kidney stone removed from (the right kidney) is not better
It is now dilated which means it’s swelled and has urine backed up in it…. Hydronephrosis…
We’ve had some tests done to see if it was another stone
It’s not
It may possibly be a complication from the surgery like a build up of scar tissue where the ureter meets the kidney….
To complicate things even more her bladder is also a complex case…here’s a mouthful for you….
A neurogenic trabeculated bladder with diverticuli
Which means the bladder is not emptying completely, the walls are thickened and she has out pouchings all over her bladder from the excessive internal pressure
We don’t know why
Possibly a mix of her Edward’s Syndrome (trisomy 18) and also her history of chronic utis and the septic infections
So we have been working with both Children’s in Pittsburgh Urology as well as continuing with Children’s in Philadelphia Nephrology to see what’s what and why and more tests
Faith is okay overall, we’ve had to add some extra things in her routine to manage her symptoms such as intermittent cathing, prevention of further UTIs and a very close eye on any UTIs that may be brewing
We have a couple of tests here in the next month at both hospitals and hopefully the combined findings from these tests can get us answers
We’ve had to be diligent and we have to continue to do so because these two issues can cause kidney damage and that’s a huge issue that we would very much want to avoid.
We are praying for answers, we are praying for action, we are praying for healing
And also Faith is learning a teeny tiny bit of sign language…her favorite sign is “Love” she wanted to tell you all she loves you ❤️ (first pic)If that doesn't make you cry, then what would?
- WMJ77 and Spawn of Bon
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Great new research using real food and nutrients to improve your health.
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Worse, there are a multitude of selfish and thieving people among us who use stupid/uneducated people as weapons or tools. Their only thought process is to take everything they can get from others. Whether they know it or not, they are being used by Satan to steal and destroy God's creation.
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16 hours ago, Pompeii said:
Your sides you are talking about ... have nothing to do what I am talking about.
It's good vs evil >>> NOT DEMS VS REPUBLICANS.How can you be in the middle when 95% of ALL politicians are corrupt? Mostly all of them are either paid off or blackmailed or both.
That is why OUR WORLD is in so MUCH TROUBLE, because of people like you, that don't want to take sides between good & evil!! Forget YOUR politics, (they are mostly all crooks) ... use your God given common sense. Decide on what you think is good and then decide what is bad. Problem now solved without staying in the safe neutral middle.You are absolutely right. There is no way to find out who the real bad guys are, so go to the source of the hatred and greed, it's Satan. Since he's not imprinted (yet) on anyone's forehead, "by their works you will know them". This is why we will lose this battle but win the war. You have to know the real enemy.
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That is absolutely true. We're having them come to do a couple of smaller jobs that we can't get anyone else to touch.
We need the fan above the kitchen stove that was installed years ago when we remodeled the kitchen to actually go through the kitchen ceiling and up to wherever it's supposed to vent. It goes to the ceiling and just stops so I can't use it at all. Every time I make hamburgers inside and really want to brown them, the whole living/kitchen area is filled with smoke and smells of beef for the entire day.
We also need an extension added to our wood stove chimney above the roof line to improve the draft. I'm betting these guys know exactly how to do that.
There are lots more small jobs that hubby doesn't want to take on anymore at the age of 75, and since our son moved out, we have to hire everything done. I hate leaving jobs unfinished because it's "too late in the year to do it now"!
I'm going to keep these guys busy as long as my saved money holds out and smile all the way!
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At the petition signing, we had a gentleman rush up to sign it because he was excited to do so. He commented that he has spent his life as a Forensic Auditor, working for the government and businesses from the largest to the smallest. His comment on the DuBois situation is that he would never touch it because it's a nightmare.
I would guess that Nasuti feels the same.
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We are not at over 930 signatures but hopefully we will be able to continue to add more till the date for presenting the petition.
If you can assemble a group at a specific location (a club meeting of just a casual get together) call and I will deliver the petition for signing.
Contact Cheryl at gardenladyx@gmail.com or 814-590-9010 to set a date and time.
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A local team of Amish workers is looking for Saturday jobs. One day or several Saturdays in a row. Call 814-481-3203 and leave a message.
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The entire mess will be a daily nightmare till it gets settled regardless of who is involved, and those involved right now will certainly not be fun to be working with.
Get the point now? Some of us can sympathize with his situation.
No one wants to work in a stressful situation, and this one is beyond stressful regardless of who they would be working with..
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I just quit my job specifically because of some of the people I worked with who acted like children or a nasty ladies group. I loved the job but the nonsense ruined the rest of my life at home. I don't blame him one bit for preserving the calm in his life. You sacrifice way beyond what you are paid and get harassed and belittled the entire time. Only a few people are strong enough to deal with it, and they give up so much to serve us. When they do a good job, and work hard, money is only part of what they deserve, they deserve acknowledgement and respect.
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Recommendations on desk top computer for older woman a little familiar with Windows, likes regular family/individual type games, puzzles, lots of pictures, e-mail, currently on Comcast, needs WORD only, not all of the Office Suite programs, wants available local tech support.
Please send a private message back to me. I have been working on her computer but it is kaput! Her kids will be giving her this for Christmas or earlier and I will send them your suggestions.
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23 hours ago, Petee said:
We have almost 600 signatures. Hopefully we will have all 1000 by this weekend. We will continue collecting signatures but will not be sitting out at tables collecting them once we reach our initial goal. If you want to sign, and cannot find a petition location, please give me a call and I'll make sure someone contacts you.
I think we are close to 700 now but I have not reviewed them this evening to be sure.
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We have almost 600 signatures. Hopefully we will have all 1000 by this weekend. We will continue collecting signatures but will not be sitting out at tables collecting them once we reach our initial goal. If you want to sign, and cannot find a petition location, please give me a call and I'll make sure someone contacts you.
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Treasure Lake near the Post Office area will be added at some time on Tuesday, August 29.
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4 hours ago, WMJ77 said:
basically they said that it’s a complication from the surgery she had in Philly so therefore it’s there problem so I wait till Monday to talk with CHOP (Philly)
that sounds like total bull s%^t to me....I know they are a childrens hospital but they dont have to act like a mad child
It's Faith's problem, no one else's and everyone should be fighting for the chance to take care of her instead of worrying about their own butts which probably work just fine!!! I stand whole heartedly behind the people at Johns Hopkins. They could not have been better to me.
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1 hour ago, Spawn of Bon said:
Oooo how I wish I could post videos on here 😭
anyway….Faith was also referred to Make A Wish by her oncologist and social worker and she was approved, so Peanut wished for a swing set so she could play outside and spend time with her family and friends outside too ❤️ that’s her Papa Rick (Deryk’s dad) in the pics with peanut and me
She needs a heated greenhouse so she can go outside in the winter and soak up some rays every day!
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During Business Hours
Sabula Auto Sales
255 North
1 mile south of Sabula
Sandy Township Tax Collector
9 Overdorf Avenue
Go over Sandy Bridge
3rd street on left
Carlson Auto Repair
E Park and S. Stockdale
Directly across from fire company
As available locations
When volunteers are available to man petition table
Save A Lot Market
219 S of Sandy Bridge 3 blocks
Treasure Lake Entrance
Old 255 N at end of road
If you have questions or are available to man a table, please contact Cheryl at 814-590-9010 or e-mail gardenladyx@gmail.com
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