etsaunt

I watched reruns of the X-Files. I figured I would hear and see more truth.

Chief Clark tends to be disliked by criminals.

How can you guys be so sure the Chief was in on pressuring the Sheetz Manager to drop the charges?  The way I read the report that is going around, Mr. Suplizio stated that the Chief was also on the line with him and the Sheetz lady, but was he really?  I read nothing of what the Chief supposedly spoke, so I wonder if he was even in on the call.  Perhaps it was just a ploy by Mr. Suplizio to pressure the lady.  I would be very careful about implicating the Chief of Police.  I have never heard a bad word about him, and as far as I can see, he has been very upstanding.  Also, if someone is guilty of theft, I seriously doubt he is going to try to cover it up.  

While out for a ride today we saw a large amount of wind turbine blades and other parts at the rail yards by Fort Worth pipe.  My question is any one know how they got there. I can’t imagine them being shipped by rail because they are huge.  Thought maybe they are assembled there. These turbines fascinate me.  I would appreciate any info.  Thanks.  

I never really realized how huge the blades are.  

I believe they did come by rail front port of Erie. To be put on towers on Sandy Ridge

Thank you!  I understand what is going on in this country but some times you just need a break.  It was very refreshing to look at your pictures.  

Maybe, no definitely, they should let kids be kids. Kindergarteners do not need an in depth discussion of sexuality. It sounds like some kind of mental pedophilia. Let the little ones to play in the sandbox and not worry about which bathroom they should use. Some of them probably want to grow up to be horses anyway. 

WOW! she went from a baby to a beautiful toddler.  I can not imagine the joy she brings your family because I know she makes my heart happy just seeing her pictures.

WOW! she went from a baby to a beautiful toddler.  I can not imagine the joy she brings your family because I know she makes my heart happy just seeing her pictures.

Happy Thanksgiving from the Spichers! And yes Faith is standing on her own with a little help from the couch!

What beautiful pictures! The power of Prayer.

I can’t even be.I’ve April was the last time I posted SMH anyway, so Faith no longer has the NG tube, she has a mic-key button in her belly so she can get her formula, ..it looks the air valve on a beach ball…anyway, she has been going to outpatient therapy weekly and has 7 therapies in home! She’s been busy! But she is making sooo much progress! Plus she is up to 20lbs now! She was down to 15lbs while on chemo so she is bouncing back weight wise! And her hair has gotten so thick!

And look at all she’s doing! No hands!

Happy Birthday beautiful girl, I can’t even begin to express my love and admiration for you. Your beauty and strength and that infectious smile inspire me and many others! Happy last Chemo day too! It’s a beautiful day! Hallelujah!

The drs gave her 1/2 a bag of fluids before her chemo treatment. She still didn’t want to eat much the next morning. Of course she wouldn’t drink her bottle at all.
They called the dr & she said if no luck by 8pm, they must bring her over. Try force feeding if needed by syringe.
Well, Brandi started with formula. Faith didn’t like it, but she took everything they put in the back of her throat. If it touches her tongue, she gags & spits it out. Part of that has to do with chemo and she has sensory issues with food & liquids. They got enough in her between yesterday that the dr said she didn’t need to come over to CHP last night!! 🤩🥳😍🥰🤗
They are coming home today!! Thank you for all your Prayers for Baby Faith!!
 

Fantastic news.  She is definitely a true superhero. ❤️❤️❤️

Fantastic news.  She is definitely a true superhero. ❤️❤️❤️

They are getting DISCHARGED!! 

Faith had a good night, another fever free day. She Slept good, eating again, She ate pears for breakfast, yogurt for lunch and bananas for supper, almost ready for home ❤️ Maybe tomorrow!!

Faith received two different kinds of chemo yesterday. This happens every third treatment. When she has these two chemos together it really knocks the snuff out of her (VinCristine and Dactinomycin). She slept last night and most of today only to wake up enough to eat a bottle or some puréed pears ( her fav food when she’s not feeling well) then back to sleep again. 
She’s finally perking up now and wanted to sing to you all! ❤️🥰😞 (Sorry I can’t post her video)

Warning, This is going to be a long post. 
Also Trigger Alert
We took Faith to Pittsburgh on Thursday and Friday for some regular follow up visits, a BAHA hearing aid fitting as well as Pre-Op surgery clearance. The surgery is for her eyes due to strabismus with esotropia (which means her eyes are crossed but only one eye turns in at a time, not both at once)
So I’ll start from the top.
She was fitted for her hearing aid and as you seen in the previous post, it went well. 
What we did learn is that Faith should only need this type of hearing aid and not a permanent one that’s implanted behind her ear. As she grows her hearing should get better as her ear canals widen. So good news. She also got a CT scan of her ears to make sure there is nothing physically affecting her hearing such as blockages or fluid or wax....we are waiting for the results on this.
We saw her cardiologist who was very pleased that her heart has remained stable. She still has the small vsd (hole in her heart) but this is not causing any issues or affecting her in any way other than when she gets sick she has a harder time getting over the colds. So Faith graduated to one year visits!! He was very pleased that Faith has exceeded his expectations! So yay! Good news!
We saw her eye doctor who measured her eyes once more to make sure the surgery was necessary and would be effective. Yes to both of those. Even though the inner muscle pulls her eyes inwards alternately, her vision itself is fine. So she can have her hey surgery! Yay! Good news!
Okay so there’s all the good news.
While we were down there Faith needed to have a screening abdominal ultrasound to check her kidneys. Children with Trisomy 18 are at higher risk of developing Wilms Tumor which is a type of kidney cancer. 
We received these results on Friday 
The ultrasound showed multiple lesions on her left kidney (nephroblastomas) as well as a 2.2cm mass (the size of a ping pong ball). It also showed she has gallstones too.
So an ultrasound is like looking at a black and white tv through a fish bowl. This does not give the drs a full view of how much her left kidney is affected.
So we are going down for an MRI to look at her left kidney and get a better idea of what’s going on. 
Then they are going to try and do a biopsy while she is having her eye surgery.
Then once we get a better idea of what’s going on she may be receiving some “soft” chemotherapy which is the lightest stuff they can give her, easy on her heart as well as her immune system.
Or
She will receive “soft “ chemo and possibly have an operation to remove a part of or her whole kidney. This is depending on the MRI results as well as the biopsy.
We need to move fast. We are going to wage war. These lesions and this mass are ticking time bombs. It is not a matter of “if” it will turn to cancer, it is a matter of when and how bad, but remember, at this moment, it is not cancer, yet.
The chemo will act as a weed killer in a sense, by killing these nephroblastomas (the weeds) before they grow into a bigger problem and spread. 
This will be a week by week and at times a day by day process. 
This is not going to be something that is going away quickly, it’s going to take time and patience, but most of all...it’s going to take prayer.
So what I’m asking of all of you is to do what you’ve been doing all along.... pray.
If Faith has taught us anything it’s that when we come together as one, United, there is Power in Prayer and she is proof of this!
I don’t want you to feel sad.
I don’t want you to feel bad.
I don’t want you to feel sorry.
I want you to feel strong 
I want you to feel the strength of the Holy Spirit coursing through your veins as you pray.
I want you to feel the power and the hope of Jesus Christ in your heart.
She is not just my Faith, she is OUR FAITH!
We are going to keep moving forward, we are not giving up! And Faith is going to keep doing what she’s always done, Defy the Odds and Prove that there really is Power in Prayer cause that’s how she rolls! 
So pray folks and pray hard, put your hearts into it cause this little girl is living off of YOUR PRAYERS and YOUR LOVE! 
Thank you for all your support and your faith in Faith❤️

Love this! The look on her face says it all! 🥰

Thank you, to everyone who has followed along with Faith Marie’s journey to reach a year old!! The majority of us learned what Trisomy 18 is. We also learned that “Trisomy 18 is a Diagnosis, Not a Prognosis.” We have no idea what the future holds, we will go day by day. Everything is in God’s Hands, His plans & His time. 🙏🏻💜🙏🏻