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Bon

Meet my granddaughter Faith Marie

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How are her skill levels doing versus what was expected?


"The world will not be destroyed by those who do evil but by those who watch them without doing anything"

Albert Einstein

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13 hours ago, Bon said:

Faith was 6 mos on July 15th, that’s a 9-18% survival rate for trisomy 18 babies. Faith will defy the odds and keep proving that there is power in prayer!

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She is so sweet and her smile is contagious! 🥰 You go girl! Sending continued prayers for this precious baby.  :pray:

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2 hours ago, Bon said:

Yes she has, isn’t it wonderful!! She is starting to eat baby food now, she loves applesauce!! The rice flakes helped put weight on her also.

Brandi said every time a hole closed in her heart, she would go through a growth spurt. The last time it happened was when she grew 2” in 1 month, but they didn’t know the hole closed!!

Faith Marie has one more hole, it usually requires surgery to close it. She is hungry a lot, wants held more, sleepy, etc. These are all the same things she did a couple months back when she had that big growth spurt. We are all praying that the last hole closed up!! We won’t know till the end of this month. 🙏🏻❤️🙏🏻

Sending prayers for baby Faith that it closed and she doesn't need surgery. 🙏 😇 

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On 8/2/2019 at 8:58 AM, Bon said:

Yes she has, isn’t it wonderful!! She is starting to eat baby food now, she loves applesauce!! The rice flakes helped put weight on her also.

Brandi said every time a hole closed in her heart, she would go through a growth spurt. The last time it happened was when she grew 2” in 1 month, but they didn’t know the hole closed!!

Faith Marie has one more hole, it usually requires surgery to close it. She is hungry a lot, wants held more, sleepy, etc. These are all the same things she did a couple months back when she had that big growth spurt. We are all praying that the last hole closed up!! We won’t know till the end of this month. 🙏🏻❤️🙏🏻

God has created our bodies to heal themselves naturally.  Hopefully all her needs fall into place so she is able to heal herself.  All of the love and care is obviously being provided.  The rest may well follow.  If not, then He also gave us knowledge to make quick repairs!  Sweet baby, sweet family!


"The world will not be destroyed by those who do evil but by those who watch them without doing anything"

Albert Einstein

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1 hour ago, sapphire said:

OMG, those little feetsies crossed at the ankles are just too cute. 🤗 Girl knows how to pose! 🤩 Congrats to baby 👑 Faith!

That is from the Trisomy 18. Her ankles were crossed when she was in the NICU.

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5 hours ago, Bon said:

That is from the Trisomy 18. Her ankles were crossed when she was in the NICU.

That just means that she's a natural!  No lessons needed for that doll.


"The world will not be destroyed by those who do evil but by those who watch them without doing anything"

Albert Einstein

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