Bon 10,665 Report post Posted January 30 As told by her mother Brandi... So many of you have been wondering how Faith is doing. Thank you all for your thoughts prayers and support through this journey. Faith had a rough start since being brought into this world and been through more than most adults. She was born full term via c section due to being breech. Her head was under my ribs and she wouldn’t turn. When she came out she did pretty well Tuesday then on Wednesday she started having episodes of apnea. Her brain wasn’t sending signals to her lungs to breathe. She was put on a cpap then by Thursday she was placed on a ventilator. Friday we were told that she has trisomy 18, Edwards Syndrome which is a rare chromosomal defect. There is no cure, no fix, it just is. These babies have short life spans. They are lucky if they live past the first 6-9days of life. By Saturday the ventilator was doing all the breathing for her and Deryk and I had to make a heart breaking decision. That’s not a life living on a vent for the rest of her days. But our little girl wasn’t done fighting yet, she was not done living! The vent was discontinued, she opened her eyes and breathed! She was placed on monitors to track her oxygen, heart rate and respiration’s. We waited another week to see how she would do. No more episodes of apnea! We went through a week of education and learning how to care for once she came home. Our hope was restored! She would come home! Our Faith is now 2 weeks old and defying the odds! Our Faith is a true testimony that there is power in prayer! ❤️ I also have to say that the staff at Penn Highlands DuBois NICU and maternity are amazing people! We couldn’t have gotten this far without them! They went above and beyond their call of duty and made whatever accommodations for Faith, us and our family. They have been a God send for us and we are forever grateful to them. 💝 16 2 Sanibel, Pompeii, Tiramisu and 15 others reacted to this Quote Share this post Link to post Share on other sites
sapphire 4,601 Report post Posted January 30 Faith is a fighter. She must take after the women in the family! Praying for the very best for this precious little angel. 1 2 Bon, Polo and mr.d reacted to this Quote Share this post Link to post Share on other sites
Sanibel 982 Report post Posted January 30 She is beautiful! You are all in our prayers. 1 2 Polo, Bon and mr.d reacted to this Quote Share this post Link to post Share on other sites
MIM307 1,824 Report post Posted January 30 I have goosebumps. Thank-you for sharing this story. Faith, and her entire family, will be in my prayers. 1 1 1 Polo, mr.d and Bon reacted to this Quote Share this post Link to post Share on other sites
Lyndsey33 3,245 Report post Posted January 30 Adorable. Glad she is holding her own. 1 1 1 Polo, Bon and mr.d reacted to this Quote Share this post Link to post Share on other sites
katie77 70 Report post Posted January 30 Oh how precious. Prayers. 1 1 1 Bon, Polo and mr.d reacted to this Quote Share this post Link to post Share on other sites
WMJ77 6,537 Report post Posted January 30 prayers to all of you.....she is a cutie 1 2 Bon, Polo and mr.d reacted to this Quote To achieve the title of old and wise, you must first be young and dumb Light travels faster than sound. This is why some people appear bright until you hear them speak. Share this post Link to post Share on other sites
disgruntled 610 Report post Posted January 30 Keep fighting Little one! 1 1 1 Polo, mr.d and Bon reacted to this Quote "A Bill of Rights is what the people are entitled to against every government, and what no just government should refuse." - Thomas Jefferson Share this post Link to post Share on other sites
Jay 1,834 Report post Posted January 30 Prayers for you and this beautiful child. 1 1 1 Bon, mr.d and Polo reacted to this Quote Share this post Link to post Share on other sites
Guest Debby Report post Posted January 30 She is a beautiful little girl. I have been praying for her and the family since she was born. So glad she is doing so well. God is good. Quote Share this post Link to post Share on other sites
Pompeii 3,401 Report post Posted January 30 what a cutie ... prayers to Faith, family and friends. 1 2 mr.d, Bon and Polo reacted to this Quote How to post a Classified Ad | How to Edit or Delete a Classified Ad Share this post Link to post Share on other sites
Petee 4,197 Report post Posted January 30 She's definitely a little princess! Check out the crowns. 1 1 1 Polo, mr.d and Bon reacted to this Quote "The world will not be destroyed by those who do evil but by those who watch them without doing anything" Albert Einstein Share this post Link to post Share on other sites
mr.d 4,699 Report post Posted January 30 Great out come, and prayers work. Beautiful little girl. 1 1 1 Bon, Sanibel and Polo reacted to this Quote Share this post Link to post Share on other sites
Georgie_girl 1,201 Report post Posted January 31 I'm so glad she's doing well. I've been wondering. So cute!! 1 1 Bon and Polo reacted to this Quote You must be the change you wish to see in the world- Ghandi Share this post Link to post Share on other sites
Bon 10,665 Report post Posted January 31 28 minutes ago, Georgie_girl said: I'm so glad she's doing well. I've been wondering. So cute!! I’m so happy you got to meet Peanut in the NICU. ❤️ 1 1 Georgie_girl and WMJ77 reacted to this Quote Share this post Link to post Share on other sites
Georgie_girl 1,201 Report post Posted January 31 54 minutes ago, Bon said: I’m so happy you got to meet Peanut in the NICU. ❤️ Me too. I'm happy she got to go home! 💜💜 3 WMJ77, Bon and mr.d reacted to this Quote You must be the change you wish to see in the world- Ghandi Share this post Link to post Share on other sites
etsaunt 381 Report post Posted January 31 God works in mysterious ways. How great it is for this little princess to get such a loving family and for this family to get such a special baby girl❤️ I know you will enjoy everyday with the little beauty. 2 1 1 mr.d, Bon, Polo and 1 other reacted to this Quote Share this post Link to post Share on other sites
Polo 1,200 Report post Posted January 31 Beautiful baby! A precious gift! Prayers for her and family. 1 Bon reacted to this Quote Every day is a gift from God; that's why we call it the "present!" Share this post Link to post Share on other sites
BART 163 Report post Posted January 31 This is so tender and heartwarming ! We cannot comprehend how close our Lord watches over these little ones. God bless to all in this family, and prayers for this tiny Youngster!! 3 1 1 Bon, mr.d, Polo and 2 others reacted to this Quote Share this post Link to post Share on other sites
momtothree 529 Report post Posted February 1 She's precious. Prayers for baby and her family. 1 1 1 Polo, mr.d and Bon reacted to this Quote Share this post Link to post Share on other sites
junk 1,212 Report post Posted February 1 So Cute. Thoughts and prayers for Faith Marie. 1 1 Bon and mr.d reacted to this Quote No One will come here,,At Night ,,In the Dark Share this post Link to post Share on other sites
junk 1,212 Report post Posted February 1 Bon, did you knit her outfit in the last photo? Really cool. 1 1 sapphire and Bon reacted to this Quote No One will come here,,At Night ,,In the Dark Share this post Link to post Share on other sites
Tinyus 248 Report post Posted February 1 Faith is a precious gift...she is adorable. I love the pictures, thank you for sharing such a heart warming story. It was nice to hear such positive things. Brought tears to my eyes...enjoy every little bit of her!! 1 Bon reacted to this Quote Share this post Link to post Share on other sites
Bon 10,665 Report post Posted February 1 2 hours ago, junk said: Bon, did you knit her outfit in the last photo? Really cool. No, that was a gift from the NICU nurses. 2 sapphire and junk reacted to this Quote Share this post Link to post Share on other sites
sapphire 4,601 Report post Posted February 1 1 hour ago, Bon said: No, that was a gift from the NICU nurses. I so love her princess beanie. 1 1 junk and Bon reacted to this Quote Share this post Link to post Share on other sites
