Bon 12,459 Report post Posted January 30, 2019 As told by her mother Brandi... So many of you have been wondering how Faith is doing. Thank you all for your thoughts prayers and support through this journey. Faith had a rough start since being brought into this world and been through more than most adults. She was born full term via c section due to being breech. Her head was under my ribs and she wouldn’t turn. When she came out she did pretty well Tuesday then on Wednesday she started having episodes of apnea. Her brain wasn’t sending signals to her lungs to breathe. She was put on a cpap then by Thursday she was placed on a ventilator. Friday we were told that she has trisomy 18, Edwards Syndrome which is a rare chromosomal defect. There is no cure, no fix, it just is. These babies have short life spans. They are lucky if they live past the first 6-9days of life. By Saturday the ventilator was doing all the breathing for her and Deryk and I had to make a heart breaking decision. That’s not a life living on a vent for the rest of her days. But our little girl wasn’t done fighting yet, she was not done living! The vent was discontinued, she opened her eyes and breathed! She was placed on monitors to track her oxygen, heart rate and respiration’s. We waited another week to see how she would do. No more episodes of apnea! We went through a week of education and learning how to care for once she came home. Our hope was restored! She would come home! Our Faith is now 2 weeks old and defying the odds! Our Faith is a true testimony that there is power in prayer! ❤️ I also have to say that the staff at Penn Highlands DuBois NICU and maternity are amazing people! We couldn’t have gotten this far without them! They went above and beyond their call of duty and made whatever accommodations for Faith, us and our family. They have been a God send for us and we are forever grateful to them. 💝 19 2 sapphire, Sanibel, Gator11 and 18 others reacted to this Quote Share this post Link to post Share on other sites
sapphire 6,098 Report post Posted January 30, 2019 Faith is a fighter. She must take after the women in the family! Praying for the very best for this precious little angel. 1 1 2 mr.d, Bon, Dobby and 1 other reacted to this Quote Share this post Link to post Share on other sites
Sanibel 1,299 Report post Posted January 30, 2019 She is beautiful! You are all in our prayers. 1 2 Bon, mr.d and Polo reacted to this Quote Share this post Link to post Share on other sites
MIM307 2,450 Report post Posted January 30, 2019 I have goosebumps. Thank-you for sharing this story. Faith, and her entire family, will be in my prayers. 1 1 1 mr.d, Bon and Polo reacted to this Quote Share this post Link to post Share on other sites
Lyndsey33 5,167 Report post Posted January 30, 2019 Adorable. Glad she is holding her own. 1 1 1 Polo, Bon and mr.d reacted to this Quote Share this post Link to post Share on other sites
katie77 185 Report post Posted January 30, 2019 Oh how precious. Prayers. 1 1 1 mr.d, Bon and Polo reacted to this Quote Share this post Link to post Share on other sites
WMJ77 7,725 Report post Posted January 30, 2019 prayers to all of you.....she is a cutie 1 2 Polo, mr.d and Bon reacted to this Quote To achieve the title of old and wise, you must first be young and dumb Light travels faster than sound. This is why some people appear bright until you hear them speak. Share this post Link to post Share on other sites
disgruntled 1,681 Report post Posted January 30, 2019 Keep fighting Little one! 1 1 1 Bon, Polo and mr.d reacted to this Quote "A Bill of Rights is what the people are entitled to against every government, and what no just government should refuse." - Thomas Jefferson Share this post Link to post Share on other sites
Jay 2,125 Report post Posted January 30, 2019 Prayers for you and this beautiful child. 1 1 1 mr.d, Polo and Bon reacted to this Quote Share this post Link to post Share on other sites
Guest Debby Report post Posted January 30, 2019 She is a beautiful little girl. I have been praying for her and the family since she was born. So glad she is doing so well. God is good. Quote Share this post Link to post Share on other sites
Pompeii 4,970 Report post Posted January 30, 2019 what a cutie ... prayers to Faith, family and friends. 1 2 mr.d, Polo and Bon reacted to this Quote PLEASE VISIT OUR SPONSORS: KURT JOHNSON AUTO | N&N CINNAMON CO | DUBOIS DINER | PIZZA HUT | RIDE ATA | BATH & MORE | ROYERS 322 | BLACK & WHITE | FIND-A-JOB-PA | DAVIDSON CONSTRUCTION | THE TANNERY | AEGIS COFFEE | PRECISION VISION | HIGH TOP CHIMNEY | LUIGI'S RISTORANTE | CALLIARI'S BAKERY | CCAAA | DUNLAP L&G | PALUMBO'S CATERING | JOHNSON AUTO | BARONICK FH | PH HEALTHCARE | BUCK'S PIZZA | FORSYTH DRILLING | WATSON LAWN CARE | Share this post Link to post Share on other sites
Petee 5,191 Report post Posted January 30, 2019 She's definitely a little princess! Check out the crowns. 1 1 1 Polo, Bon and mr.d reacted to this Quote "The world will not be destroyed by those who do evil but by those who watch them without doing anything" Albert Einstein Share this post Link to post Share on other sites
mr.d 6,515 Report post Posted January 30, 2019 Great out come, and prayers work. Beautiful little girl. 1 1 1 Polo, Bon and Sanibel reacted to this Quote Share this post Link to post Share on other sites
Georgie_girl 1,261 Report post Posted January 31, 2019 I'm so glad she's doing well. I've been wondering. So cute!! 1 1 Polo and Bon reacted to this Quote You must be the change you wish to see in the world- Ghandi Share this post Link to post Share on other sites
Bon 12,459 Report post Posted January 31, 2019 28 minutes ago, Georgie_girl said: I'm so glad she's doing well. I've been wondering. So cute!! I’m so happy you got to meet Peanut in the NICU. ❤️ 1 1 WMJ77 and Georgie_girl reacted to this Quote Share this post Link to post Share on other sites
Georgie_girl 1,261 Report post Posted January 31, 2019 54 minutes ago, Bon said: I’m so happy you got to meet Peanut in the NICU. ❤️ Me too. I'm happy she got to go home! 💜💜 3 WMJ77, mr.d and Bon reacted to this Quote You must be the change you wish to see in the world- Ghandi Share this post Link to post Share on other sites
etsaunt 554 Report post Posted January 31, 2019 God works in mysterious ways. How great it is for this little princess to get such a loving family and for this family to get such a special baby girl❤️ I know you will enjoy everyday with the little beauty. 2 1 1 mr.d, WMJ77, Bon and 1 other reacted to this Quote Share this post Link to post Share on other sites
Polo 1,845 Report post Posted January 31, 2019 Beautiful baby! A precious gift! Prayers for her and family. 1 Bon reacted to this Quote Every day is a gift from God; that's why we call it the "present!" Share this post Link to post Share on other sites
BART 187 Report post Posted January 31, 2019 This is so tender and heartwarming ! We cannot comprehend how close our Lord watches over these little ones. God bless to all in this family, and prayers for this tiny Youngster!! 3 1 1 WMJ77, Polo, Jay and 2 others reacted to this Quote Share this post Link to post Share on other sites
momtothree 610 Report post Posted February 1, 2019 She's precious. Prayers for baby and her family. 1 1 1 Bon, Polo and mr.d reacted to this Quote Share this post Link to post Share on other sites
junk 1,319 Report post Posted February 1, 2019 So Cute. Thoughts and prayers for Faith Marie. 1 1 Bon and mr.d reacted to this Quote No One will come here,,At Night ,,In the Dark Share this post Link to post Share on other sites
junk 1,319 Report post Posted February 1, 2019 Bon, did you knit her outfit in the last photo? Really cool. 1 1 sapphire and Bon reacted to this Quote No One will come here,,At Night ,,In the Dark Share this post Link to post Share on other sites
Tinyus 462 Report post Posted February 1, 2019 Faith is a precious gift...she is adorable. I love the pictures, thank you for sharing such a heart warming story. It was nice to hear such positive things. Brought tears to my eyes...enjoy every little bit of her!! 1 Bon reacted to this Quote Share this post Link to post Share on other sites
Bon 12,459 Report post Posted February 1, 2019 2 hours ago, junk said: Bon, did you knit her outfit in the last photo? Really cool. No, that was a gift from the NICU nurses. 2 sapphire and junk reacted to this Quote Share this post Link to post Share on other sites
sapphire 6,098 Report post Posted February 1, 2019 1 hour ago, Bon said: No, that was a gift from the NICU nurses. I so love her princess beanie. 1 1 Bon and junk reacted to this Quote Share this post Link to post Share on other sites
